“At a coffee and chat group you can connect with people who understand.


Coffee and chat groups give people living with epilepsy the chance to meet new people, share experiences and learn more about life with epilepsy


People living with epilepsy, family members and carers meet informally, somewhere they can feel safe from harm and prejudice.  Somewhere to be with others, where people understand.”    Epilepsy Action


In the Isle of Man, the group also includes people with PNES, their family and carers.


NEW***  The group meets on the third Tuesday in the month

from 21st February 2017 Alternate months  in Coffee Republic (upstairs room),

Strand Street, drop in anytime between 6:00pm to 8:00pm 

and between 10:00am and12:00am depending on the month

“Epilepsy Action” Coffee & Chat Volunteers:

Rosa Drown, Frank Bray






Epilepsy Action has trained accredited volunteers in the Isle of Man to provide epilepsy awareness courses:


“Accredited volunteers (AVs) are fully trained by Epilepsy Action in delivering informative presentations to groups or organisations who want to learn about epilepsy.  All Epilepsy Action materials are painstakingly researched, tested and checked – and an AV’s work is no exception!  Each AV receives very thorough training and makes sure that they are well prepared for each and every presentation.”  ‘Epilepsy Today’ December 2014


Courses can be tailored to meet the requirements of different groups, for example, in the work place, colleges and schools, healthcare and service providers, interest groups, clubs and societies. Information leaflets will also be provided.


Courses do not provide medical training but can include


  • What epilepsy is

  • Seizures and seizure types

  • Diagnosis and treatment of epilepsy

  • What to do if you witness a seizure

  • First Aid for seizures

  • Living with epilepsy

  • Developing a policy – this will take the form of a discussion with the group or organisation following the presentation.  Feedback will then be provided to the group or organisation so that they will be able to formulate their own policy


To discuss your requirements or to find out more about the awareness courses contact us:  email or call 07624 314310


Alternatively, contact “Epilepsy Action” directly by phoning 0113 210 8800 or the area manager for the Isle of Man, Cliff Challenger, on 01274 640064





Epilepsy Action’s website:  also

provides a great deal of information about different

aspects of epilepsy.


Their Helpline is also available to all:

Freephone 0808 8000 5050,



Details of how to become a member of “Epilepsy Action”,

including the benefits it can give you are also detailed on

their website.  Isle of Man residents pay the same fee

as those from the UK. 

Please note, however that their website will not give you

specific Isle of Man information.



Isle of Man Epilepsy Association, IOM Charity registration No. 648


Contacts: , EPSA IOM, 10 Derwent Drive, Onchan, Isle of Man IM3  2DG

Tel:  07624 481792,   email:


  Chairperson: Bethany De Legh-Runciman,  Treasurer: Douglas Drown,  Secretary: Michael Jones

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